Parents and carers of those with Cardio-Facio-Cutaneous Syndrome supporting each other and sharing information.
Cardio-Facio-Cutaneous Syndrome
Our aims:
'Living with CFC' is an interactive bank of resources and experiences for those who care for a child or adult with CFC Syndrome. As CFC is so rare, care providers often have no direct personal experience of caring for those with CFC syndrome. Our aim is so help families to connect and share information as well as build a bank of helpful experiences, advice and recommendations to help each other navigate their way through the CFC minefield.
